Therapeutic area · Transplant medicineUpdated September 29, 2026

EDC for transplant trials, from donor to long-term graft function

Transplant trials follow a participant from surgery through rejection episodes, drug level adjustments and infections, often for years. Capture structures transplant, biopsy, lab and event data in one study, with kidney function calculated as sites enter data.

  • eGFR calculated at entry
  • Trough level logs
  • Biopsy and rejection forms

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Renal function · Month 6
Subject 004-0021 · Kidney transplant recipientSubmitted

Serum creatinine

CREAT
1.4mg/dL

eGFR (CKD-EPI 2021)

EGFR
54 mL/min/1.73 m² Calculated

Tacrolimus trough

TACTRGH
7.2ng/mL

Within protocol target range

Calculated read-only during entry

What matters in transplant trials

  • Kidney transplant trials commonly use a composite efficacy failure endpoint: biopsy-proven acute rejection, graft loss, death or loss to follow-up, typically at 12 months.
  • Graft function, usually eGFR, is a key secondary endpoint and increasingly important for long-term outcomes.
  • Immunosuppressant trough levels and dose changes need to be captured over time to interpret efficacy and safety.
  • Rejection is graded on biopsy using the Banff classification, often with central pathology review.
  • Infections such as CMV and BK virus, and donor-specific antibodies, are important safety and efficacy data.

Study design

The first year is dense, the follow-up is long

The weeks after transplantation involve frequent visits, drug level checks and dose adjustments, with rejection episodes most likely in the first months. After that, visits space out but follow-up often continues for years, because graft survival is the outcome that matters most to patients. The study needs a schedule that handles both: dense early visits with windows, and long-term follow-up that keeps participants engaged.

Transplant data also includes the transplant itself: donor type and characteristics, ischaemia times, HLA mismatches and induction therapy. These baseline factors strongly influence outcomes and are often stratification factors, so they need to be structured and verified early.

Stem cell transplantation

Haematopoietic stem cell transplant trials have different endpoints: engraftment, graft-versus-host disease graded by standard criteria, relapse and non-relapse mortality. See EDC for hematology trials.

Schedule of assessments · Kidney transplant trial
AssessmentTxD7W2M1M3M6M12
Renal function and eGFR
Trough levels
Protocol biopsy
Viral monitoring (CMV, BK)
Donor-specific antibodies

Plus for-cause biopsies and unscheduled visits

Kidney function

eGFR and creatinine clearance calculated as sites enter data

Calculated fields show eGFR (CKD-EPI 2021) and creatinine clearance (Cockcroft-Gault) read-only during entry, so the site sees kidney function immediately. Trough levels are recorded as repeating rows with dates and times, each row with its own audit trail, and range checks raise queries when values fall outside the limits you set.

  • eGFR CKD-EPI 2021 and Cockcroft-Gault.
  • Repeating rows for trough levels.
  • Range checks with auto-queries.
Lab results eCRF template
Calculated field

BMI (Body Mass Index)

Auto-derived

Height (cm)

172

Weight (kg)

68.5

Result

23.2 kg/m²

Reference: WHO · shown read-only during data entry

AnthropometryBMIBSA (Mosteller)BSA (Du Bois)Waist-hip ratio
VitalsMAPPulse pressure
RenaleGFR (CKD-EPI 2021)CrCl (Cockcroft-Gault)
CardiacQTc (Bazett)QTc (Fridericia)QTcF from heart rate
DatesAge from DOBMinutes betweenHours between

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Endpoints

Transplant endpoints and the data behind them

EndpointData needed
Efficacy failure compositeBiopsy-proven acute rejection, graft loss, death, loss to follow-up, with dates
Biopsy-proven acute rejectionBiopsy date, indication, Banff grade, central read if used, treatment
Graft functionCreatinine, eGFR, proteinuria over time
Graft and patient survivalGraft loss and death with causes, long-term follow-up
InfectionsCMV and BK monitoring, infection events and treatment
Immunological riskHLA mismatches, donor-specific antibodies

Safety

Balancing rejection and over-immunosuppression

Every transplant trial balances two risks: too little immunosuppression leads to rejection, too much leads to infections, malignancy and drug toxicity. Safety data therefore includes infections, new-onset diabetes after transplantation, kidney toxicity from calcineurin inhibitors, and cancers over long follow-up. Structured adverse event forms with the minimum dataset enforced, and serious events routed for review, keep that data consistent.

Concomitant medications matter too: many drugs interact with immunosuppressants and change trough levels. Record them on the concomitant medications form with start and stop dates.

Study build

Transplant study build checklist

Transplant and donor data

Donor type, ischaemia times, HLA mismatches, induction.

Efficacy failure definition

Components and time point in the analysis plan.

Biopsy forms

Indication, Banff grading and central review fields.

Trough level log

Repeating rows with dates, times and dose changes.

Infection monitoring

CMV and BK schedules and event forms.

Long-term follow-up

Graft survival and safety beyond the primary time point.

FAQ

Questions teams ask before they switch

Something not covered here? Ask us directly.

Why are donor data needed?

Donor type, ischaemia times, HLA mismatches and induction therapy influence outcomes and are often stratification factors.

How long are participants followed?

The primary endpoint is often at 12 months, with graft and patient survival followed for years.

What is the primary endpoint in kidney transplant trials?

Commonly a composite efficacy failure endpoint of biopsy-proven acute rejection, graft loss, death or loss to follow-up, often at 12 months.

Can eGFR be calculated during entry?

Yes. eGFR (CKD-EPI 2021) and creatinine clearance (Cockcroft-Gault) are calculated fields shown read-only during entry.

How are trough levels recorded?

As repeating rows with dates, times and values, each row with its own audit trail.

How is rejection graded?

Usually with the Banff classification on biopsy, often with central pathology review.

Are stem cell transplant trials supported?

Yes. Engraftment, GVHD, relapse and survival data can be structured in the same way.

Can I try it free?

Yes, in the free sandbox with every feature.

Transplant data, from surgery to years of follow-up

Calculated eGFR, trough logs and biopsy forms. Free sandbox.

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