Therapeutic area · Heart failureUpdated September 28, 2026

EDC for heart failure trials, from events to how patients feel

Heart failure trials count hospitalisations and deaths, measure symptoms and function, and depend on eligibility criteria built on ejection fraction, natriuretic peptides and kidney function. Capture structures all of it in one study.

  • Structured event forms
  • eGFR calculated at entry
  • KCCQ completed at home

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Heart failure event · Unscheduled
Subject 012-0041 · Potential endpoint eventSubmitted

Event type

HFETYPE
Hospitalisation for heart failure

Admission date

HFESTDTC
03-Apr-2027

Intravenous diuretics given

HFEIVD
NoYes

Source documents collected for review

HFESRC
NoYes
Structured facts for the events committee

What matters in heart failure trials

  • Outcome trials commonly use a composite of cardiovascular death or heart failure hospitalisation, analysed as time to first event or as total events.
  • Hierarchical composite endpoints, analysed with methods such as the win ratio, combine death, hospitalisations and patient-reported health status in order of importance.
  • The KCCQ is the leading patient-reported outcome, alongside NYHA class and the 6-minute walk test.
  • Eligibility usually depends on ejection fraction, NT-proBNP (often with different thresholds in atrial fibrillation) and kidney function.
  • Endpoint events are typically reviewed by an independent clinical events committee under a charter.

Study design

Events need structure before adjudication

Heart failure outcome trials live or die on event capture. A site reports a hospitalisation as an adverse event; someone must recognise it as a potential endpoint, collect the discharge summary and other source documents, and send a structured package to the clinical events committee. When those steps depend on memory, events are missed or arrive incomplete.

Structured event forms help: a dedicated heart failure event form with the facts the definition depends on (admission, length of stay, intravenous diuretics or other treatment, signs and symptoms), and a clear link from the adverse event to the event form. Keep the investigator-reported event and the committee's adjudicated result as separate variables, so the analysis uses the adjudicated outcome and the difference can be reviewed.

Worsening heart failure outside hospital

Many recent trials also count urgent visits with intravenous diuretics or outpatient intensification of oral diuretics. If your endpoint includes them, give them their own event type and the fields that define them.

Potential endpoint event workflow
  1. Site records hospitalisation

    Serious AE and heart failure event form

  2. Source documents collected

    Discharge summary and key results

  3. 3

    Events committee review

    Per the adjudication charter

  4. 4

    Adjudicated result recorded

    Kept separate from site-reported event

Adjudication itself follows your charter and process

Eligibility

eGFR and BMI calculated as sites enter data

Calculated fields show eGFR (CKD-EPI 2021), creatinine clearance (Cockcroft-Gault), BMI and other derived values read-only during entry, so the site sees immediately whether a participant meets kidney function criteria. Custom-value edit checks raise a query when ejection fraction or NT-proBNP values fall outside the protocol thresholds.

  • eGFR CKD-EPI 2021 and Cockcroft-Gault.
  • Eligibility queries at entry.
  • Lab values with units and reference ranges.
Lab results eCRF template
Calculated field

BMI (Body Mass Index)

Auto-derived

Height (cm)

172

Weight (kg)

68.5

Result

23.2 kg/m²

Reference: WHO · shown read-only during data entry

AnthropometryBMIBSA (Mosteller)BSA (Du Bois)Waist-hip ratio
VitalsMAPPulse pressure
RenaleGFR (CKD-EPI 2021)CrCl (Cockcroft-Gault)
CardiacQTc (Bazett)QTc (Fridericia)QTcF from heart rate
DatesAge from DOBMinutes betweenHours between

Patient-reported outcomes

Health status collected at home

Participants with heart failure often find extra clinic visits tiring. The KCCQ and other questionnaires can be completed at home on the participant's phone from a secure link, with windows and reminders around each time point, and licence details recorded on the form.

  • Phone ePRO, no app.
  • Windows and reminders.
  • Licence tracking for licensed instruments.
KCCQ eCRF template
1

When due

18:00

Your evening diary is open

2

Next day

18:00

Reminder: your diary is still open

3

Final notice

21:30

Last chance before the window closes

Quiet hours

22:00 to 08:00 in the participant's time zone

Stops

As soon as the task is completed

Build an event form and eligibility checks

Set up calculated eGFR and heart failure event forms in the free sandbox.

Build your heart failure study free

Endpoints

Heart failure endpoints and the data they need

EndpointData needed
CV death or HF hospitalisation (time to first event)Event forms, death forms with cause, adjudicated results, dates
Total HF eventsEvery event, including recurrent hospitalisations and urgent visits
Hierarchical composite (win ratio)Death, events and KCCQ change, with the order defined in the analysis plan
KCCQ changeQuestionnaires at baseline and follow-up time points
6-minute walk distanceStandardised walk tests at visits
NT-proBNP changeCentral or local lab values with dates and units

Safety

Kidney function, potassium and blood pressure

Many heart failure drugs affect kidney function, potassium or blood pressure, and participants often take several such drugs already. Safety monitoring therefore focuses on repeated lab values and vital signs, with thresholds that trigger dose adjustments. Range edit checks on potassium, creatinine and blood pressure raise queries at entry so values outside expected ranges are confirmed quickly.

Background therapy also matters for interpretation: record guideline-directed medications and dose changes on the concomitant medications form, because changes in background therapy during the trial can affect outcomes.

Study build

Heart failure study build checklist

Event definitions

HF hospitalisation, urgent visit and death forms with defining fields.

Adjudication data

Source document collection and separate adjudicated variables.

Eligibility thresholds

LVEF, NT-proBNP (including AF thresholds) and eGFR checks.

PRO schedule

KCCQ at defined time points, completed at home.

Safety checks

Potassium, creatinine and blood pressure ranges.

Background therapy

Guideline-directed medications and dose changes recorded.

FAQ

Questions teams ask before they switch

Something not covered here? Ask us directly.

What are typical heart failure trial endpoints?

A composite of cardiovascular death or heart failure hospitalisation, total heart failure events, hierarchical composites, and health status measured by the KCCQ.

Does Capture run event adjudication?

Capture structures event data and records adjudicated results as separate variables. The adjudication process itself follows your committee's charter.

Can eGFR be calculated during entry?

Yes. eGFR (CKD-EPI 2021) and creatinine clearance (Cockcroft-Gault) are available as calculated fields shown during entry.

Can participants complete the KCCQ at home?

Yes, on their own phone from a secure link, with windows and reminders.

What is a win ratio?

An analysis of a hierarchical composite endpoint that compares each participant in one arm with each in the other, starting with the most important outcome.

Can I try it free?

Yes, in the free sandbox with every feature.

Heart failure data, structured from the start

Events, eligibility and PROs in one study. Free sandbox.

Build your heart failure study free